Adalia Rose Williams, social media star who documented her life with rare genetic disorder, has died at 15

Adalia Rose Williams
Adalia Rose Williams, a social media star who documented her journey with a rare genetic condition, has died at 15. Screenshot/YouTube – Adalia Rose
  • Adalia Rose Williams, a YouTuber with a rare genetic condition, has died, her social media says.
  • Williams lived with progeria, a condition that involves rapid aging, according to Mayo Clinic.
  • Williams was diagnosed around 3 months old, her mother told the New Zealand Herald in 2018.

Adalia Rose Williams, a social media star who documented her life with a rare genetic condition, has died at 15, according to posts on her Instagram and Facebook pages. She died on Wednesday evening, the posts said. 

The Texas-based teenager had over 12 million Facebook followers and 2.9 million subscribers on YouTube, where she posted health updates, makeup videos, comedy skits, and videos featuring other family members.

“She touched MILLIONS of people and left the biggest imprint in everyone that knew her,” states the post, which was published Wednesday evening. “She is no longer in pain and is now dancing away to all the music she loves.”

Williams was diagnosed with Hutchinson-Gilford syndrome at around 3 months old, her mother, Natalia Pallante, told the New Zealand Herald in 2018.

The condition, also known as progeria, has no known cure and involves children aging much faster than normal with symptoms including hair loss and slow growth, according to Mayo Clinic. The average life expectancy for a child with the condition is 13 years old, according to Mayo Clinic. 

Approximately 400 children across the world have the condition, according to the Progeria Research Foundation.

Williams’ earliest videos date back to 2012 and feature her dancing. The YouTube star’s most recent video, posted in November, showed her unboxing a silicone baby doll named “Luka.” Her channel has over 339 million views. 

Insider reached out to an email address listed on Williams’ Facebook page but did not receive a response at press time.